Wednesday, March 19, 2008

GEARING UP FOR A GREAT EVENT!



Remember, there are still plenty of tickets for Jon Jon's Journey coming up on March 29th. Tickets are available at the front desk of the Town of Tonawanda Police Station.

We have over 300 donated baskets, several large screen TV's and plenty of gift certificates all available for raffle the day of the event.

More information is available by contacting Mike Baumgartner

Tuesday, March 18, 2008

Guest Bartender Night

Guest Bartender Night
Wednesday April 2, 2008 7:00PM

There will be a guest bartender night at The Blue Lantern Restaurant
6120 Seneca Street
in Elma

(Restaurant Information)

(Driving Directions)

Guest Bartenders will be Mark & Missy Subjeck, Jim DeLacy and Ashley Reimers. All tip money collected will be donated to the Cinelli Family. It is a very nice place, Anne, Ashley, Kelsey and I have been there for dinner and they have a burger the size of a dinner plate that is awesome!!!(It can definitely be shared by 2-3 people) Encourage all your friends to come out for a fun night. Hope to see you all there.

Sunday, March 16, 2008

IT IS JUST AMAZING TO US!!

Hi!
We went to see Dr. Fitzpatrick on Thursday as scheduled and the appointment went great. She was so excited about the MRI. She said that the tumor was originally about the size of a golf ball and had a litlle "finger" up in to Jon Jon's left brain hemisphere and after the radiation and chemo it is now about the size of a PEA OR SMALLER!!!! She said that she has NEVER seen such a drastic improvement in a tumor of this type ever!!
Of course, she had to keep us focused and said she doesn't know if this will change the ultimate outcome or prolong Jon Jon's life, but she'd like to think that it will and, of course so do we! She didn't have any idea what actually caused such a drastic response to the treatment so we are going to continue doing the same exact thing that we have been, except for the radiation. He had the lifetime dose already.
So we will do our part by continuing to give him his meds and supplements and we ask that all of you continue to your part by keeping the prayers and thoughts coming for him!! Like Dr. F said, let's enjoy this great news for a while!! We go for his next MRI in 3 months.
Next Wednesday we'll meet with Dr. Awner at Children's. He is a pediatric eye surgeon and is going to be the one to fix Jon Jon's eye. We'll find out if and when he can do it when we are there. 2 hours after that we'll meet with Dr. Duffner and Dr. Rozelle to discuss the MRI a bit further and also some things for follow up and future care options.
Speaking of that, he has been taken off the Decadron and has been put on a milder steroid which is for the physiologic changes that occured while on the Decadron. Hopefully that means some of the facial and abdominal puffiness will reduce. He lost about 6 pounds over the last month since his dose of the Decadron was significantly reduced.
That's about it for now. Enjoy the great word with us and please continue those prayers!!!

God Bless!!!

Love,
The Cinelli's

Wednesday, March 12, 2008

FANTASTIC NEWS!!

Hi All!!
Just wanted to let everyone know that Jon Jon had his first MRI last week and we are supposed to see the doctors tomorrow for the results. However, Dr. Fitzpatrick just called me because she was pretty happy with the results and knew we were worried about tomorrow. Any way, she said the MRI looked "GREAT", even better than she anticipated it would look at this point!! Of course we know it is because of the wonderful people and the excellent medical care he has received from Children's and Roswell that has worked wonderfully, but we also believe it is because of everyones good thoughts and prayers, so keep them coming PLEASE!!!!
Thank you and GOD BLESS!!

Love,
Jon, Anne, Jon Jon, and Claire